At the time of her diagnosis, Helen's children were 7, 16, and 18.  Her husband was the General Manager of a clothing factory in Maine, an important and very busy time in his career.  As a Mom in the 60's and early 70s, Helen was the consummate volunteer, helping to reopen and run the school library, coordinating classroom volunteers, and running school fundraisers (she would prepare and cook 500 meatballs for spaghetti suppers).  As an Italian woman, she felt great pride and joy in her family and she heartily welcomed everyone into her home. In the spring of 1970, she was diagnosed with ALS and was told she had one year to live.   

Helen gradually lost her abilities to cook, walk, write, talk, and care for herself; but, as typical with ALS, her mind remained sharp.  Without the benefit of the internet, she learned about experimental treatments and had us write letters to others with ALS.  Her spirits certainly waned at times and occasionally she wanted to give up, yet she persisted and contributed to the family.  She even got to hold her first grandchild who referred to Helen as "Nena". All the while, her family was reeling at the impending loss of daughter/wife/mother.  Helen died five years later, a few months after celebrating her 25th wedding anniversary. 

ALS UNITED Greater Chicago is a non-profit organization fighting ALS on every front through innovative research, active advocacy, and comprehensive care.  The organization strives to build hope and enhance quality of life while aggressively searching for new treatments and a cure. 

Helen’s legacy is well served by raising funds that are used to support patients, caregivers, families, and research.