ALS is a devastating neuromuscular disease that can begin as a simple muscle twitch in the fingers or weakness in the legs and progress to the point of paralysis. There is currently no known cure for ALS, and most treatment and therapy options are done to hopefully help the individual "plateau" (stay at their current state and/or progress slowly) and conserve their energy. ALS United works to raise awareness for the disease, advocate at the state and national level, fund research, and provide services for those living with ALS.

For the past several months, I have had the honor of completing a clinical rotation at the Jay S. Fishman ALS Augmentative Communication Program at Boston Children’s Hospital. We provide communication options for those whose lives are ever changing following an ALS diagnosis. As the disease progresses, someone might experience muscle weakness and paralysis, difficulty speaking, swallowing impairments, or compromised breathing. In our clinic, we support communication and daily needs through several avenues— voice and message banking, speech generating technology, voice amplification strategies…the list goes on. This support allows our patients to maintain their dignity, sense of self, and quality of life. It is a privilege to be part of such a wonderful team so dedicated to providing solutions and eliminating barriers. 

Each patient that has come through our doors has truly touched my heart and changed my life for the better. It’s my hope that someday there is more to offer them in the face of this diagnosis that takes so much away— whether it’s cutting-edge new treatment options, new technology, or a cure. I’m ecstatic to be running for a team that is setting out to do just that. 

Donations are greatly appreciated but absolutely not expected. You can help in other ways by sharing my link to spread the word and cheering me on as I train. 

With love and gratitude,

Hannah